716-896-2470 info@wnybloodcare.org

WNYBC Foundation

The WNYBC Foundation was established in 2014 as a result of the Hemophilia Center of WNY Board of Directors desire to provide assistance to families in the Western New York community and work more vigorously toward its mission.
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Objectives

The WNYBC Foundation works to provide support through financial and educational assistance in collaboration amongst individual families and organizations throughout the bleeding and clotting community.

Scholarships

The goal of the WNYBC Scholarship Program is to provide a better quality of life for individuals affected by Hemophilia, von Willebrand Disease, Gaucher, and other genetic bleeding disorders by awarding financial assistance for advanced education and training, leading to employment and access to health insurance.

Grants

The WNYBC Foundation makes grants to the National Hemophilia Foundation (NHF) Annual Meeting for patients to attend. This is a great opportunity for them to meet other families and learn more about Hemophilia.

Foundation Board Members 2022

  • George Anderson
  • Martin Brecher, MD
  • Katherine Burdette
  • Mike Cimato
  • Mary M. Comerford
  • Marcia Gellin, Ed. D
  • Mary Haggerty
  • Katie Holmberg
  • Clare Hunter
  • Ashley Long
  • Thomas Long
  • Ralph Jeswald
  • Elizabeth McNamara
  • Jonathan Moyer

2021-2022 Scholarship Recipients:

Allison Barsi

Ashley Gilman

Cadence Brunecz

Jacob Aguglia

Samuel Cimato

Sierra Tuller

Simon Randle

Tanner Kulbacki

Taylor Hunter

Academic Scholarships

Annual Academic Scholarships are awarded to patients affiliated with the HTC through the WNYBC Foundation. There is a maximum of 8 years eligibility. Award notifications are announced in the Spring. Click here for Scholarship FAQs.

Eligibility:

  • Full time students
  • Minimum high school average of 80% or GPA of 2.5 or >
  • Higher education for 2 year, 4 year, Grad School, Vocational or Trade School.

2022 Scholarship Application: New Applicants

2022 Scholarship Application: Repeat Applicants

We will begin accepting applications for the 2020- 2021 school year December 3rd, 2020. The deadline for completed applications is March 26th.

Advocacy

How do we Advocate for our patients? Western New York BloodCare networks with many organizations across the state and country to identify key issues with lawmakers that directly impact our patients.

Albany Days

There is an annual overnight trip to Albany with HTC staff and patients who wish to speak directly to our state legislators at the Capitol building in the spring. Participants are briefed on the current political issues and have direct access to the lawmakers through constituent meetings in their Albany offices.

Washington Days

The National Hemophilia Foundation hosts an annual overnight trip to Washington DC and invites HTC’s and their patients to meet with their federal representatives and discuss current political issues that have a direct impact on their health care. Participants are trained on the issues and encouraged to “tell their story” to the lawmakers in Washington.

New York State Bleeding Disorders Coalition

Our HTC is a member of the NYS Bleeding Disorders Coalition. Our participation in this Coalition strengthens our advocacy and focuses the efforts of several NYS HTC’s and Bleeding Disorder Chapters into one team.

Links & Resources

If you are interested in speaking up and having your voice heard through these advocacy efforts, contact our HTC today and we’ll teach you how to “tell your story”.

Get Involved

Would you like to get involved in WNYBC Chapter Events and Programming? Interested in Community Outreach?

Let our Chapter Staff know your areas of interest. Contact us at getinvolved@wnybloodcare.org.

Other ways to get involved include:

Advocacy:

Advocacy occurs in many forms, from talking with others about your health condition to meeting with government officials around specific topics and issues. We visit  officials in Albany and Washington, DC every year to educate lawmakers about challenges faced by people we serve.

Becoming a Board Member:

Board members are the heart of our organization. Whether it be our Center’s Board of Directors or Foundation Board, members are key to furthering our mission.

Committee Member:

We need your expertise! Do you have a specialized area or interest? We have committees that are always looking for new members.

Volunteers:

Office volunteers to Day of Event help- everyone is welcome!

Donate:

Thank you in advance for your generous support. Your financial donation makes a difference to each and every individual and family affected by bleeding and clotting disorders.