We have confirmed that unfortunately, our “Friends Making a Difference” Golf Tournament will not be held this year due to scheduling conflicts. Fingers crossed for 2022.
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When: Rare Disease Day - Sunday, February 28, 2021 @ 7:30pm EST
Get cozy on the couch in your favorite pajamas to listen to NHF’s new children’s book for kids with rare bleeding disorders, Super Seven! You’ll meet Tanner, a basketball-obsessed kid who has big dreams, a big game ahead of him – and a rambunctious little sister. You'll play an interactive game with Super Bowl champion, philanthropist, and entrepreneur Josh Gordy, and then settle down to listen to NHF’s president and CEO, Dr. Len Valentino, read the first chapter of Super Seven. If you have a rare bleeding disorder in your family, or just want to join the fun...
Super Seven was written by the National Hemophilia Foundation and is appropriate for kids ages 8-12.
Don’t forget to wear your favorite pajamas!