Join us for Western New York BloodCare's inaugural Annual Meeting on Saturday, February 22, 2020 at the Buffalo Niagara Marriott. This educational event gives patients and members of the bleeding disorders community an opportunity to learn more about the Hemophilia Treatment Center (HTC) and it's staff and programs and services we offer. In addition, we will have breakout sessions with topics such as 340B program, Advocacy, History of Hemophilia, genetics, physical activity and more! Lunch will be provided.
|9am- 10am||Registration and Exhibits
|Continental Breakfast Provided||Ballroom 1-3|
Getting to Know Your HTC / What is 340B
Laurie Reger,PT, MSHA, Jessica Wolf, LSW,
Rose Ritchie, Julia Thiel, RN, BSN,
Joanne Riso, RN, BS
|11:15am- 12:15pm||Break Out Sessions #1- Select a Workshop
|The Force Is With You
Lori Jagow, BS, CLM
Bringing harmony and balance to a family affected by impairment.
|Genetics and Genomics
Dr. Carolyn Farrell, PHD, MS, WHNP-BC, CSC and Linda Belling,
The practical aspects of Genetics including family history, risk assessment and testing.
|Emergency Room Preparedness
What you need to know for a successful trip to the ER
|12:30pm- 1:30pm||Lunch presented by CSL Behring
“Gettin’ in the Game” athlete
|1:45pm- 2:45pm||Break Out Sessions #2 - Select a Workshop
|When Help Doesn’t Help!
Lori Jagow, BS, CLM
Becoming aware of healthy and unhealthy patterns of worry within a family system
|Bleeding Disorders - A Man’s Perspective
Bob Graham, Mike Tuberdyck, Jim Pietrzak
|Girl Talk- The Relationship between Females & Bleeding Disorders
Dr. Beverly Schaefer and Jessica Wulf, LSW
|3:00- 3:30pm||Vendor Exhibits
“Find A Vein”, 2020 Events, “Save One Life” & MORE
Get your PASSPORT and fill it out for a chance at the door prize.
|3:30-4:30pm||Wrap it up- Door prize drawing, evaluations, Snack for the Road||Ballroom 1-3|
|5pm – 6:15pm||Optional Evening Sessions - Select one
|Bombardier Blood screening
An inspirational film about Chris Bombardier who made History as the first person with Hemophilia to summit Mount Everest.
|“Speak Up, Reach Out: An Introduction to Legislative Advocacy, Albany Days"|
Provided for those staying for Evening Sessions