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WNY BloodCare Annual Meeting

February 22, 2020

Chapter Events

Join us for Western New York BloodCare's inaugural Annual Meeting on Saturday, February 22, 2020 at the Buffalo Niagara Marriott. This educational event gives patients and members of the bleeding disorders community an opportunity to learn more about the Hemophilia Treatment Center (HTC) and it's staff and programs and services we offer. In addition, we will have breakout sessions with topics such as 340B program, Advocacy, History of Hemophilia, genetics, physical activity and more! Lunch will be provided.

Download PDF of Agenda

Annual Meeting

9am- 10am Registration and Exhibits

  Continental Breakfast Provided Ballroom 1-3
10am- 11am Welcome

Getting to Know Your HTC / What is 340B
Laurie Reger,PT, MSHA, Jessica Wolf, LSW,
Rose Ritchie, Julia Thiel, RN, BSN,
Joanne Riso, RN, BS
Ballroom 1-3
11:15am- 12:15pm Break Out Sessions #1- Select a Workshop

  The Force Is With You
Lori Jagow, BS, CLM
Bringing harmony and balance to a family affected by impairment.

Salon A
  Genetics and Genomics
Dr. Carolyn Farrell, PHD, MS, WHNP-BC, CSC and Linda Belling,
The practical aspects of Genetics including family history, risk assessment and testing.

Salon B
  Emergency Room Preparedness
Jessica Graham
What you need to know for a successful trip to the ER
Salon C
12:30pm- 1:30pm Lunch presented by CSL Behring
Peter Dickson
“Gettin’ in the Game” athlete
Ballroom 1-3
1:45pm- 2:45pm Break Out Sessions #2 - Select a Workshop

  When Help Doesn’t Help!
Lori Jagow, BS, CLM
Becoming aware of healthy and unhealthy patterns of worry within a family system

Salon A
  Bleeding Disorders - A Man’s Perspective
Bob Graham, Mike Tuberdyck, Jim Pietrzak

Salon C
  Girl Talk- The Relationship between Females & Bleeding Disorders
Dr. Beverly Schaefer and Jessica Wulf, LSW
Salon B
3:00- 3:30pm Vendor Exhibits
Pharmaceutical Representatives
“Find A Vein”, 2020 Events, “Save One Life” & MORE
Get your PASSPORT and fill it out for a chance at the door prize.
3:30-4:30pm Wrap it up- Door prize drawing, evaluations, Snack for the Road Ballroom 1-3
5pm – 6:15pm Optional Evening Sessions - Select one

  Bombardier Blood screening
An inspirational film about Chris Bombardier who made History as the first person with Hemophilia to summit Mount Everest.

  “Speak Up, Reach Out: An Introduction to Legislative Advocacy, Albany Days"  
6:30pm-730pm Dinner
Provided for those staying for Evening Sessions
(Reservations Required)

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