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Our Center currently offers our patients the opportunity to participate in various research studies. These studies are integrated with patient care, while aiming to improve the overall understanding of health issues of people with bleeding disorders. We hope that these projects will enable us to keep blood disorders at the forefront of scientific research and for us to become better advocates for our patients.

A partial list of ongoing studies are listed below. If you are interested in being a part of any of these research projects, please contact us or talk to our staff at your next office visit. We will discuss the study with you more thoroughly and your responsibilities as a participant.

  • Community Counts! CDC Public Health Surveillance of Bleeding Disorders – Registry
    The purpose of the project is to monitor the health status of people with hemophilia and other bleeding disorders seen in HTCs nationwide and to better understand health issues among these patients. This information may be useful for doctors to prevent and reduce complications of bleeding disorders.

  • My Life, Our Future (MLOF): A Hemophilia Genotyping Initiative Data and Sample Research Repository
    Nationwide genotype testing offered at no cost to HTC patients who have hemophilia A and B, or a family member.

  • Bioverativ 997HA306: An Open-Label, Multicenter Evaluation of the Safety and Efficacy of Recombinant Coagulation Factor VIII Fc Fusion Protein (rFVIIIFc; BIIB031) in the Prevention and Treatment of Bleeding in Previously Untreated Patients with Severe Hemophilia A
    The primary purpose of the study is to evaluate the safety and efficacy of rFVIIIFc (Eloctate) in previously untreated patients with severe hemophilia A.

  • Bayer 18559: A Multinational Phase IV Study Evaluating “Real World” Treatment Pattern in Previously Treated Hemophilia A Patients Receiving KOVALTRY (Octocog alfa) for Routine Prophylaxis
    The primary objective of the study is to investigate weekly prophylaxis regimen of patients using Kovaltry, including treatment satisfaction and adherence to the drug.

  • Comprehensive and Multidisciplinary Approach to Evaluation of Young Women with Heavy Menstrual Bleeding: Impact on diagnosis, management and outcomes
    This project aims to prospectively determine menstrual bleeding patterns and prevalence of underlying bleeding disorders in young women with heavy menstrual bleeding.

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