How Do We Advocate for our Patients? The Hemophilia Center of WNY networks with many organizations across the state and country to identify key issues with lawmakers that directly impact our patients.
There is an annual overnight trip to Albany with HTC staff and patients who wish to speak directly to our state legislators at the Capitol building in the spring. Participants are briefed on the current political issues and have direct access to the lawmakers through constituent meetings in their Albany offices.
The National Hemophilia Foundation hosts an annual overnight trip to Washington DC and invites HTC’s and their patients to meet with their federal representatives and discuss current political issues that have a direct impact on their health care. Participants are trained on the issues and encouraged to “tell their story” to the lawmakers in Washington.
Our HTC is a member of the NYS Bleeding Disorders Coalition. Our participation in this Coalition strengthens our advocacy and focuses the efforts of several NYS HTC’s and Bleeding Disorder Chapters into one team.
If you are interested in speaking up and having your voice heard through these advocacy efforts, contact our HTC today and we’ll teach you how to “tell your story”.